About Carney-Stratakis syndrome
Carney-Stratakis syndrome is a rare disease catalogued by Orphanet (ORPHA:97286). It is associated with the SDHA, SDHB, SDHC genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.
Clinical Trial Eligibility Tips
What to know before applying to Carney-Stratakis syndrome trials.
Search ClinicalTrials.gov for "Carney-Stratakis syndrome" or filter by Orphanet code ORPHA:97286 to find disease-specific studies.
Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.
Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.
Patient Resources
Find recruiting Carney-Stratakis syndrome trials
Search 500,000+ studies from ClinicalTrials.gov, filtered for Carney-Stratakis syndrome. Updated daily.