Disease Directory Carney complex
Rare Disease

Carney complex

Type

Disease

Gene

PRKAR1A, PDE11A

About Carney complex

Carney complex is a rare disease catalogued by Orphanet (ORPHA:1359). It is associated with the PRKAR1A, PDE11A genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Carney complex trials.

Search ClinicalTrials.gov for "Carney complex" or filter by Orphanet code ORPHA:1359 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:1359)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Carney complex trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Carney complex. Updated daily.