Rare condition

Wells syndrome

ORPHA:901 ↗

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studies recruiting now

as of 7 Sept 2026

studies registered in total

as of 7 Sept 2026

countries with a recruiting site

as of 7 Sept 2026

16 May 2025

most recent study posted

among recruiting studies

Recruiting trials

RecruitingPhase 1NCT06974877

Repeat PET/CT Imaging in People With CAPS and Anakinra-Induced Amyloidosis Using an Amyloid-Reactive Peptide to Measure Changes in Organ-Specific Amyloid Load

Sponsor National Institute of Allergy and Infectious Diseases (NIAID)Where United States (1 site)Studying 124I AT-01Updated 19 May 2026

See details

RecruitingNot applicableNCT06544018

Circadian Rhythm Deregulation in Patients With CAPS

Sponsor Hospices Civils de LyonWhere France (6 sites)Studying Genetic analysis of NLRP3, Circadian rhythm measurementUpdated 27 Feb 2026

See details

Showing the 2 most recently updated recruiting studies, as recorded 7 Sept 2026. Live status on each study page.

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Where recruiting studies are running

Countries with at least one recruiting site among the studies above, 7 Sept 2026. Tap a country to search trials there.

France United States

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Patient organisations

We do not yet list a dedicated organisation for this condition. The directories below are the best route.

NORD ↗GARD ↗Orphanet ORPHA:901 ↗

About Wells syndrome

RareTrial does not yet hold a plain-language description of this condition. The most reliable starting point is Orphanet’s expert page, which lists specialist centres, registries and patient organisations.

Orphanet expert page ↗GARD (NIH) ↗

Treatments being studied

2 approved treatments, from Open Targets (CC BY 4.0). Not medical advice.

Approved: Rilonacept (Arcalyst)Approved: Canakinumab (Ilaris)

Related conditions

Information, not medical advice. Trial listings are shown as recorded on ClinicalTrials.gov; whether any study is right for you is a decision for you and your clinicians, and eligibility is decided by each research team. Disease information from Orphanet (CC BY 4.0).