Disease Directory Tall stature-intellectual disability-renal anomalies syndrome
Renal

Tall stature-intellectual disability-renal anomalies syndrome

Type

Malformation syndrome

Gene

FIBP

About Tall stature-intellectual disability-renal anomalies syndrome

Tall stature-intellectual disability-renal anomalies syndrome is a rare disease catalogued by Orphanet (ORPHA:500095). It is associated with the FIBP gene. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Tall stature-intellectual disability-renal anomalies syndrome trials.

Search ClinicalTrials.gov for "Tall stature-intellectual disability-renal anomalies syndrome" or filter by Orphanet code ORPHA:500095 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:500095)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Tall stature-intellectual disability-renal anomalies syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Tall stature-intellectual disability-renal anomalies syndrome. Updated daily.