Rare condition

Perivascular epithelioid cell neoplasm

ORPHA:595133 ↗

Search all Perivascular epithelioid cell neoplasm trialsAlert me when a trial opens

studies recruiting now

as of 7 Sept 2026

studies registered in total

as of 7 Sept 2026

countries with a recruiting site

as of 7 Sept 2026

29 Jul 2025

most recent study posted

among recruiting studies

Recruiting trials

RecruitingNCT00001465

Study of the Disease Process of Lymphangioleiomyomatosis

Sponsor National Heart, Lung, and Blood Institute (NHLBI)Where United States (1 site)Studying Toshibia Aquilion One CTUpdated 1 Sept 2026

See details

RecruitingPhase 1 / Phase 2NCT01799538

Nebulized or Inhaled Albuterol for Lymphangioleiomyomatosis

Sponsor National Heart, Lung, and Blood Institute (NHLBI)Where United States (1 site)Studying albuterol inhaler, albuterol nebulizerUpdated 31 Aug 2026

See details

RecruitingPhase 1 / Phase 2NCT06239272

NRSTS2021, A Risk Adapted Study Evaluating Maintenance Pazopanib, Limited Margin, Dose-Escalated Radiation Therapy and Selinexor in Non-Rhabdomyosarcoma Soft Tissue Sarcoma (NRSTS)

Sponsor St. Jude Children's Research HospitalWhere United States (7 sites)Studying Surgical resection, Proton beam radiation therapyUpdated 3 Aug 2026

See details

RecruitingPhase 2NCT07089992

A Study of Pembrolizumab in People With Ultra-Rare Sarcomas

Sponsor Memorial Sloan Kettering Cancer CenterWhere United States (7 sites)Studying PembrolizumabUpdated 28 Jul 2026

See details

RecruitingNCT05676099

TSC Biosample Repository and Natural History Database

Sponsor National Tuberous Sclerosis AssociationWhere United States, Canada (26 sites)Studying Phlebotomy, Buccal (cheek) swabUpdated 24 Jun 2026

See details

Showing the 5 most recently updated recruiting studies, as recorded 7 Sept 2026. Live status on each study page.

See all 15 recruiting studies

Where recruiting studies are running

Countries with at least one recruiting site among the studies above, 7 Sept 2026. Tap a country to search trials there.

Canada United States

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Patient organisations

We do not yet list a dedicated organisation for this condition. The directories below are the best route.

NORD ↗GARD ↗Orphanet ORPHA:595133 ↗

About Perivascular epithelioid cell neoplasm

RareTrial does not yet hold a plain-language description of this condition. The most reliable starting point is Orphanet’s expert page, which lists specialist centres, registries and patient organisations.

Orphanet expert page ↗GARD (NIH) ↗

Treatments being studied

1 in clinical development, from Open Targets (CC BY 4.0). Not medical advice.

Phase 2Sirolimus (Fyarro)

Related conditions

Information, not medical advice. Trial listings are shown as recorded on ClinicalTrials.gov; whether any study is right for you is a decision for you and your clinicians, and eligibility is decided by each research team. Disease information from Orphanet (CC BY 4.0).