RecruitingNCT05731141
3
studies recruiting now
as of 7 Sept 2026
4
studies registered in total
as of 7 Sept 2026
1
countries with a recruiting site
as of 7 Sept 2026
16 Feb 2023
most recent study posted
among recruiting studies
Recruiting trials
RecruitingNCT02399527
Lymphatic Anomalies Registry for the Assessment of Outcome Data
RecruitingNCT03001180
Identification of Biomarkers for Patients with Vascular Anomalies
Showing the 3 most recently updated recruiting studies, as recorded 7 Sept 2026. Live status on each study page.
Search all Gorham-Stout disease studiesWhere recruiting studies are running
Countries with at least one recruiting site among the studies above, 7 Sept 2026. Tap a country to search trials there.
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About Gorham-Stout disease
RareTrial does not yet hold a plain-language description of this condition. The most reliable starting point is Orphanet’s expert page, which lists specialist centres, registries and patient organisations.
Treatments being studied
1 approved treatment, from Open Targets (CC BY 4.0). Not medical advice.
Approved: Sirolimus (Fyarro)
Information, not medical advice. Trial listings are shown as recorded on ClinicalTrials.gov; whether any study is right for you is a decision for you and your clinicians, and eligibility is decided by each research team. Disease information from Orphanet (CC BY 4.0).