Disease Directory FLNC-related handgrip and calf weakness-distal myopathy
Neuromuscular

FLNC-related handgrip and calf weakness-distal myopathy

Type

Disease

Gene

FLNC

About FLNC-related handgrip and calf weakness-distal myopathy

FLNC-related handgrip and calf weakness-distal myopathy is a rare disease catalogued by Orphanet (ORPHA:63273). It is associated with the FLNC gene. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to FLNC-related handgrip and calf weakness-distal myopathy trials.

Search ClinicalTrials.gov for "FLNC-related handgrip and calf weakness-distal myopathy" or filter by Orphanet code ORPHA:63273 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:63273)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting FLNC-related handgrip and calf weakness-distal myopathy trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for FLNC-related handgrip and calf weakness-distal myopathy. Updated daily.