Disease Directory Distal deletion 15q syndrome
Rare Disease

Distal deletion 15q syndrome

Type

Malformation syndrome

Gene

MCTP2

About Distal deletion 15q syndrome

Distal deletion 15q syndrome is a rare disease catalogued by Orphanet (ORPHA:1596). It is associated with the MCTP2 gene. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Distal deletion 15q syndrome trials.

Search ClinicalTrials.gov for "Distal deletion 15q syndrome" or filter by Orphanet code ORPHA:1596 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:1596)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Distal deletion 15q syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Distal deletion 15q syndrome. Updated daily.