RecruitingNot applicableNCT05535361
Rare condition
Congenital short bowel syndrome
4
studies recruiting now
as of 7 Sept 2026
43
studies registered in total
as of 7 Sept 2026
3
countries with a recruiting site
as of 7 Sept 2026
13 Nov 2024
most recent study posted
among recruiting studies
Recruiting trials
RecruitingNCT04506593
Indiana University Gastrointestinal Motility Diagnosis Registry
RecruitingNot applicableNCT06687564
Role of ACTG2 Variants in Smooth Muscle Determination and Function in Pediatric Intestinal Pseudo-obstruction.
RecruitingNCT01793168
Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
Showing the 4 most recently updated recruiting studies, as recorded 7 Sept 2026. Live status on each study page.
Search all Congenital short bowel syndrome studiesWhere recruiting studies are running
Countries with at least one recruiting site among the studies above, 7 Sept 2026. Tap a country to search trials there.
Keep watching
Get an email when a new Congenital short bowel syndrome study opens.
One email a day at most. Unsubscribe with one click.
Used only for these alerts. Privacy.
Support
Patient organisations
We do not yet list a dedicated organisation for this condition. The directories below are the best route.
About Congenital short bowel syndrome
RareTrial does not yet hold a plain-language description of this condition. The most reliable starting point is Orphanet’s expert page, which lists specialist centres, registries and patient organisations, and the genes involved (FLNA, CLMP).
Treatments being studied
4 approved treatments and 7 in clinical development, from Open Targets (CC BY 4.0). Not medical advice.
Approved: Teduglutide (Gattex kit)Approved: Somatropin (Genotropin)Approved: Fish Oil Triglycerides (Omegaven)Approved: Glutamine (Endari)
Phase 3Fe 203799
Phase 3Glepaglutide
Phase 2Vurolenatide
Phase 2Cholestyramine (Cholestyramine)
Phase 2Tocofersolan (Vedrop)
Phase 2Liraglutide (Liraglutide component of xultophy 100/3.6)
Phase 1/2Glucagon-Like Peptide Ii
Related conditions
Information, not medical advice. Trial listings are shown as recorded on ClinicalTrials.gov; whether any study is right for you is a decision for you and your clinicians, and eligibility is decided by each research team. Disease information from Orphanet (CC BY 4.0).