Disease Directory Van der Woude syndrome
Rare Disease

Van der Woude syndrome

Type

Malformation syndrome

Gene

IRF6, GRHL3

About Van der Woude syndrome

Van der Woude syndrome is a rare disease catalogued by Orphanet (ORPHA:888). It is associated with the IRF6, GRHL3 genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Van der Woude syndrome trials.

Search ClinicalTrials.gov for "Van der Woude syndrome" or filter by Orphanet code ORPHA:888 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:888)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Van der Woude syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Van der Woude syndrome. Updated daily.