About Usher syndrome type 1
Usher syndrome type 1 is a rare disease catalogued by Orphanet (ORPHA:231169). It is associated with the USH1K, CDH23, USH1C genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.
Clinical Trial Eligibility Tips
What to know before applying to Usher syndrome type 1 trials.
Search ClinicalTrials.gov for "Usher syndrome type 1" or filter by Orphanet code ORPHA:231169 to find disease-specific studies.
Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.
Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.
Patient Resources
Find recruiting Usher syndrome type 1 trials
Search 500,000+ studies from ClinicalTrials.gov, filtered for Usher syndrome type 1. Updated daily.