Disease Directory Tibial hemimelia-polysyndactyly-triphalangeal thumb syndrome
Rare Disease

Tibial hemimelia-polysyndactyly-triphalangeal thumb syndrome

Type

Malformation syndrome

Gene

SHH, LMBR1

About Tibial hemimelia-polysyndactyly-triphalangeal thumb syndrome

Tibial hemimelia-polysyndactyly-triphalangeal thumb syndrome is a rare disease catalogued by Orphanet (ORPHA:988). It is associated with the SHH, LMBR1 genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Tibial hemimelia-polysyndactyly-triphalangeal thumb syndrome trials.

Search ClinicalTrials.gov for "Tibial hemimelia-polysyndactyly-triphalangeal thumb syndrome" or filter by Orphanet code ORPHA:988 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:988)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Tibial hemimelia-polysyndactyly-triphalangeal thumb syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Tibial hemimelia-polysyndactyly-triphalangeal thumb syndrome. Updated daily.