Disease Directory Stevens-Johnson syndrome
Rare Disease

Stevens-Johnson syndrome

Type

Clinical subtype

Gene

HLA-B, IKZF1

About Stevens-Johnson syndrome

Stevens-Johnson syndrome is a rare disease catalogued by Orphanet (ORPHA:36426). It is associated with the HLA-B, IKZF1 genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Stevens-Johnson syndrome trials.

Search ClinicalTrials.gov for "Stevens-Johnson syndrome" or filter by Orphanet code ORPHA:36426 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:36426)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Stevens-Johnson syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Stevens-Johnson syndrome. Updated daily.