Disease Directory Pendred syndrome
Rare Disease

Pendred syndrome

Type

Malformation syndrome

Gene

SLC26A4, KCNJ10, FOXI1

About Pendred syndrome

Pendred syndrome is a rare disease catalogued by Orphanet (ORPHA:705). It is associated with the SLC26A4, KCNJ10, FOXI1 genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Pendred syndrome trials.

Search ClinicalTrials.gov for "Pendred syndrome" or filter by Orphanet code ORPHA:705 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:705)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Pendred syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Pendred syndrome. Updated daily.