Disease Directory Native American myopathy
Neuromuscular

Native American myopathy

Type

Malformation syndrome

Gene

STAC3

About Native American myopathy

Native American myopathy is a rare disease catalogued by Orphanet (ORPHA:168572). It is associated with the STAC3 gene. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Native American myopathy trials.

Search ClinicalTrials.gov for "Native American myopathy" or filter by Orphanet code ORPHA:168572 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:168572)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Native American myopathy trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Native American myopathy. Updated daily.