Disease Directory Menke-Hennekam syndrome
Rare Disease

Menke-Hennekam syndrome

Type

Malformation syndrome

Gene

CREBBP

About Menke-Hennekam syndrome

Menke-Hennekam syndrome is a rare disease catalogued by Orphanet (ORPHA:592574). It is associated with the CREBBP gene. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Menke-Hennekam syndrome trials.

Search ClinicalTrials.gov for "Menke-Hennekam syndrome" or filter by Orphanet code ORPHA:592574 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

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Orphanet

European reference resource for rare diseases (ORPHA:592574)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

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Find recruiting Menke-Hennekam syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Menke-Hennekam syndrome. Updated daily.