Rare condition
KID syndrome
289
studies recruiting now
as of 7 Sept 2026
2,396
studies registered in total
as of 7 Sept 2026
6
countries with a recruiting site
as of 7 Sept 2026
4 Sept 2026
most recent study posted
among recruiting studies
Recruiting trials
JAG201 Gene Therapy Study in Children & Adults With SHANK3 Haploinsufficiency
A Randomized, Double-Blind, Controlled Study Evaluating the Efficacy of Botulinum Toxin Type A (Hengli) Injection for LowerLip Asymmetry in Children With Craniofacial Microsomia
Donidalorsen Treatment in Children With Hereditary Angioedema
Non-Immunoglobulin E-mediated Food Allergies in Children
Showing the 5 most recently updated recruiting studies, as recorded 7 Sept 2026. Live status on each study page.
See all 289 recruiting studiesWhere recruiting studies are running
Countries with at least one recruiting site among the studies above, 7 Sept 2026. Tap a country to search trials there.
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Patient organisations
We do not yet list a dedicated organisation for this condition. The directories below are the best route.
About KID syndrome
RareTrial does not yet hold a plain-language description of this condition. The most reliable starting point is Orphanet’s expert page, which lists specialist centres, registries and patient organisations, and the genes involved (GJB2, GJB6).
Information, not medical advice. Trial listings are shown as recorded on ClinicalTrials.gov; whether any study is right for you is a decision for you and your clinicians, and eligibility is decided by each research team. Disease information from Orphanet (CC BY 4.0).