About Inclusion body myopathy with Paget disease of bone and frontotemporal dementia
Inclusion body myopathy with Paget disease of bone and frontotemporal dementia is a rare disease catalogued by Orphanet (ORPHA:52430). It is associated with the VCP, HNRNPA2B1, HNRNPA1 genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.
Clinical Trial Eligibility Tips
What to know before applying to Inclusion body myopathy with Paget disease of bone and frontotemporal dementia trials.
Search ClinicalTrials.gov for "Inclusion body myopathy with Paget disease of bone and frontotemporal dementia" or filter by Orphanet code ORPHA:52430 to find disease-specific studies.
Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.
Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.
Patient Resources
Find recruiting Inclusion body myopathy with Paget disease of bone and frontotemporal dementia trials
Search 500,000+ studies from ClinicalTrials.gov, filtered for Inclusion body myopathy with Paget disease of bone and frontotemporal dementia. Updated daily.