Disease Directory Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome
Renal

Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome

Type

Disease

Gene

SOX18

About Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome

Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome is a rare disease catalogued by Orphanet (ORPHA:69735). It is associated with the SOX18 gene. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome trials.

Search ClinicalTrials.gov for "Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome" or filter by Orphanet code ORPHA:69735 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:69735)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome. Updated daily.