Disease Directory Hamel cerebro-palato-cardiac syndrome
Rare Disease

Hamel cerebro-palato-cardiac syndrome

Type

Clinical subtype

Gene

PQBP1

About Hamel cerebro-palato-cardiac syndrome

Hamel cerebro-palato-cardiac syndrome is a rare disease catalogued by Orphanet (ORPHA:93946). It is associated with the PQBP1 gene. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Hamel cerebro-palato-cardiac syndrome trials.

Search ClinicalTrials.gov for "Hamel cerebro-palato-cardiac syndrome" or filter by Orphanet code ORPHA:93946 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

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Orphanet

European reference resource for rare diseases (ORPHA:93946)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Hamel cerebro-palato-cardiac syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Hamel cerebro-palato-cardiac syndrome. Updated daily.