Rare condition

Familial multiple nevi flammei

ORPHA:624 ↗Gene GNAQMorphological anomaly

0

studies recruiting now

as of 7 Sept 2026

0

studies registered in total

as of 7 Sept 2026

0

countries with a recruiting site

as of 7 Sept 2026

None

recruiting study posted to date

among recruiting studies

Recruiting trials

No registered studies found for Familial multiple nevi flammei.

ClinicalTrials.gov has no study listed under this name as of 7 Sept 2026. That can change, and there are other routes worth knowing about.

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Patient organisations

We do not yet list a dedicated organisation for this condition. The directories below are the best route.

About Familial multiple nevi flammei

RareTrial does not yet hold a plain-language description of this condition. The most reliable starting point is Orphanet’s expert page, which lists specialist centres, registries and patient organisations, and the gene involved (GNAQ).

Treatments being studied

6 in clinical development, from Open Targets (CC BY 4.0). Not medical advice.

Phase 3Brimonidine
Phase 2Imiquimod (Aldara)
Phase 2Bosentan (Stayveer)
Phase 1Ranibizumab (Byooviz)
Phase 1Talaporfin Sodium
Phase 1Sirolimus (Fyarro)

Related conditions

Information, not medical advice. Trial listings are shown as recorded on ClinicalTrials.gov; whether any study is right for you is a decision for you and your clinicians, and eligibility is decided by each research team. Disease information from Orphanet (CC BY 4.0).