RecruitingNCT01561157
Blood
Congenital erythropoietic porphyria
6
studies recruiting now
as of 7 Sept 2026
68
studies registered in total
as of 7 Sept 2026
13
countries with a recruiting site
as of 7 Sept 2026
5 May 2026
most recent study posted
among recruiting studies
Recruiting trials
RecruitingNCT07567131
Observational Study of Adults and Adolescents With Erythropoietic Protoporphyria (EPP) and X-linked Porphyria (XLP)
RecruitingNCT04883905
ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
RecruitingNot applicableNCT06273644
Clinical Research on Acute Intermittent Porphyria and the Use of Carbohydrate-Rich Diet as a Treatment
RecruitingPhase 1 / Phase 2NCT07024316
A Study to Investigate the Improvement of Photosensitivity in Terms of Skin Lesions Associated With CEP Following Administration of Oral ATL-001 (Ciclopirox Oral Solution) in Participants Aged >18 Years of Age With CEP
Showing the 5 most recently updated recruiting studies, as recorded 7 Sept 2026. Live status on each study page.
See all 6 recruiting studiesWhere recruiting studies are running
Countries with at least one recruiting site among the studies above, 7 Sept 2026. Tap a country to search trials there.
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Patient organisations
We do not yet list a dedicated organisation for this condition. The directories below are the best route.
About Congenital erythropoietic porphyria
RareTrial does not yet hold a plain-language description of this condition. The most reliable starting point is Orphanet’s expert page, which lists specialist centres, registries and patient organisations, and the genes involved (UROS, GATA1).
Treatments being studied
2 approved treatments and 1 in clinical development, from Open Targets (CC BY 4.0). Not medical advice.
Approved: Afamelanotide (Scenesse)Approved: Aripiprazole (Abilify)
Phase 2Dersimelagon
Related conditions
Information, not medical advice. Trial listings are shown as recorded on ClinicalTrials.gov; whether any study is right for you is a decision for you and your clinicians, and eligibility is decided by each research team. Disease information from Orphanet (CC BY 4.0).