Disease Directory Coats plus syndrome
Rare Disease

Coats plus syndrome

Type

Disease

Gene

CTC1, STN1

About Coats plus syndrome

Coats plus syndrome is a rare disease catalogued by Orphanet (ORPHA:313838). It is associated with the CTC1, STN1 genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Coats plus syndrome trials.

Search ClinicalTrials.gov for "Coats plus syndrome" or filter by Orphanet code ORPHA:313838 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:313838)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting Coats plus syndrome trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Coats plus syndrome. Updated daily.