Disease Directory CELSR1-related late-onset primary lymphedema
Rare Disease

CELSR1-related late-onset primary lymphedema

Type

Disease

Gene

CELSR1

About CELSR1-related late-onset primary lymphedema

CELSR1-related late-onset primary lymphedema is a rare disease catalogued by Orphanet (ORPHA:569816). It is associated with the CELSR1 gene. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to CELSR1-related late-onset primary lymphedema trials.

Search ClinicalTrials.gov for "CELSR1-related late-onset primary lymphedema" or filter by Orphanet code ORPHA:569816 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

Visit website ↗

Orphanet

European reference resource for rare diseases (ORPHA:569816)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

Search NORD ↗

Find recruiting CELSR1-related late-onset primary lymphedema trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for CELSR1-related late-onset primary lymphedema. Updated daily.