Disease Directory Capillary-lymphatic-venous malformation with segmental distribution
Rare Disease

Capillary-lymphatic-venous malformation with segmental distribution

Type

Disease

Gene

AGGF1, PIK3CA

About Capillary-lymphatic-venous malformation with segmental distribution

Capillary-lymphatic-venous malformation with segmental distribution is a rare disease catalogued by Orphanet (ORPHA:90308). It is associated with the AGGF1, PIK3CA genes. Search below for active recruiting clinical trials from ClinicalTrials.gov, or visit the Orphanet expert page for specialist centres, natural history studies, and patient registries.

Clinical Trial Eligibility Tips

What to know before applying to Capillary-lymphatic-venous malformation with segmental distribution trials.

Search ClinicalTrials.gov for "Capillary-lymphatic-venous malformation with segmental distribution" or filter by Orphanet code ORPHA:90308 to find disease-specific studies.

Ask your specialist to refer you to a Centre of Expertise — Orphanet lists all accredited centres for this condition worldwide.

Natural history studies and patient registries often enrol before drug trials open — contact the Orphanet patient community first.

Patient Resources

Patient Organization

Orphanet

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Orphanet

European reference resource for rare diseases (ORPHA:90308)

View on Orphanet ↗

NORD

National Organization for Rare Disorders

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Find recruiting Capillary-lymphatic-venous malformation with segmental distribution trials

Search 500,000+ studies from ClinicalTrials.gov, filtered for Capillary-lymphatic-venous malformation with segmental distribution. Updated daily.